So there hasn’t been any real side effects so far from Thom’s first injection. Mostly a low grade headache and soreness at the injection site. Yay! His red and white blood cell and platelet counts were good. Unfortunately his PSA level has gone up, however we believe that will begin to go down as the injections and medications begin to work. We are fortunate that Thom has good insurance, but even with that, his copay for the medication he will be taking is $2800 per month. We are working with GenesisCare to obtain a grant to cover this. Until that grant is approved his oncologist has prescribed a lower dose medication that isn’t so expensive and readily available for the short term. So, he has a bone scan on August 2, blood draws on August 5 and appointment with doc on August 12 to see if there is improvement or changes from last bone scan in April. His next injection is September 17. Both of us are doing good. As we were driving to the doctors yesterday, we were talking about how we would need lots of good humor for the road ahead. This was confirmed by the sign in the exam room we were taken to. I know this post (and all of my posts ) may have more info than some people want or need. However I feel like someone (or you know someone who) may be beginning the same type of journey and these posts might help them navigate the process, because it isn’t for the faint of heart, and education is a key. We love you all and thank you from the bottom of our hearts for all of your support. It means the world to us and is much appreciated.
RSS Feed